The IMRF and KeepSight are currently working on a study supported by the AMDF (American Macular Degeneration Foundation): Barriers to patient resilience that influence the help-seeking behavior and the speed of presentation after onset of advanced AMD.
Recruitment AD: The International Macular and Retinal Foundation, Research Division supported by the American Macular Degeneration Foundation seeks Men and Women age 55 and older with wet Macular Degeneration who have been diagnosed in the last 6-months and who would be willing to share their story for a research study.
The purpose of the study is to observe patient’s prior patient-reported experience with visual symptoms before diagnosis of Wet AMD with the goal of identifying key factors that influenced presentation speed to the doctor. Study involves Patients volunteering to participate in the study that will be interviewed over the phone. They will be asked about any symptoms they experienced, the time course of visual changes (including their use of the Amsler grid), any visual changes they did not report to their doctor, the impact of any symptoms on their activities of daily living and their feelings about having a vision problem generally. During the interview they will be asked to rank factors associated with their resilience and their decision to see a doctor.
Want to Help Others and Get a Free Gift?
Would you talk with us by phone & tell us your story?
AMDF is sponsoring a study by the International Macular and Retinal Foundation that is seeking input from AMD patients and their families. We want to hear your story.
- When did you first learn that you had AMD?
- Did anyone give you an Amsler Grid?
- How has your vision changed?
- And other questions about your thoughts of AMD.
FREE GIFT: As a thank you, we will send you $48 Cocoon Over-Rx sunglasses and case –designed to cut glare for people with AMD.
Study using our KeepSight vision monitoring tools:
Clinical Studies (National Eye Institute)
Other NEI clinical studies (Link leads to large number of research studies current and completed)